Will we listen? 2020 is the call we've all been waiting for. It feels like the opportunity to take responsibility for our part in this gigantic global shift. The waves of panic and fear have [...]
R A R E I must admit the words “Rare Disease” don't exactly feel right. Yesterday was world Rare Disease Day. I’m all for awareness, I’m a passionate advocate for our children - but rare [...]
You become many things the moment your beautiful child receives a diagnosis; an advocate, a medical researcher, an investigator, a carer, an administration executive, a taxi driver, a nurse, a doctor, an entertainer, a mind [...]
I am beyond excited to finally share with you some incredible news! A huge thanks to Virgin Australia for their approval of seating devices for infants and children with a disability. It's incredible when a company as [...]
When your friend's beautiful child has been diagnosed with something serious, it's difficult to know what to say or what to do. Here are some points that I've put together after speaking with hundreds of [...]
There is so much I want the world to know and understand about my daughter, because in creating awareness around diversity we can help break down any stigma attached to being “different”. I want the world [...]
A boundary is a line which marks the limits of an area, a dividing line. Yet this blog post is not about literal boundaries, as in actual lines in the sand, instead it’s about personal [...]
It feels like two opposing forces are at play when your child is diagnosed: So much is taken away. So much is gained. One minute I was a mum of a healthy three year old, [...]
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A Guided Relaxation For Mums
