My name is Sarah. I am a 27 yr old mother, my partner and I live along the south coast, and we would like to share our son’s story with you, as I believe that getting our story out will be helping other families and letting everyone that know your not alone at all.
Welcome Sarah and Tyler
Natalie: How did your journey begin with Tyler? What was going on through your mind and heart during this time?
Sarah: Tyler was born 2 weeks overdue, he suffered a long and somewhat traumatizing birth. He had a lot of troubles while he was coming out, and was also not breathing on his own, therefore he was in the nursery for almost a week. He had troubles breastfeeding, and even struggled while drinking a bottle. When we came home, it wasn’t until around 3-4 months of his life I had a suspicion that something just wasn’t right. My heart sank and my partner and I didn’t know what to do, as we are first time parent’s, we then started taking Tyler to the Dr’s and he referred us to a Paediatrician.
Natalie: What is the name of the condition(s) that Tyler has? Can you share with us a little more about it?
Sarah: Tyler’s condition is still not 100% diagnosed unfortunately, as he has had several tests done but still no result has come up to tell us what is exactly wrong with our beautiful fun loving boy. Tyler is on the Cerebral Palsy spectrum at the moment, as he has a lot of symptoms that show this, but he is still undergoing tests to this day. He has had an Angelman syndrome test done which may bring us the answers we have been searching for so long now. But that doesn’t mean our lives are going to be easier as having a child who can’t walk, talk, play or even go to the toilet is a massive role in itself, but my partner and I do very much look forward to helping Tyler to grow and learn and be the best he can be!!!!
Natalie: What are some words to describe William? What do you love about him?
Sarah: Tyler is absolutely fun, loving and he is always happy! He has the bluest eyes that light up the room anywhere we go, he has a very contagious giggle and he loves being outside, swimming is his favourite.
“I just love that no matter how hard your day has been Tyler will always make you laugh, and then realise that life isn’t as hard as his, but he can still smile and laugh along with you…
Natalie: What are your worries and wishes for Tyler?
Sarah: My worries for Tyler are not seeing him happy in himself as he gets older, not seeing him do normal everyday things like going for a walk, driving a car or even socialising in an everyday way. But I do wish that one day Tyler will walk, or even eat solid food all on his own. I wish fTylerler to just have the happiest life possible and I will be by his side every little step he takes.
Natalie: I’m passionate about the special needs and self-care connection. Raising a child with a medical condition can bring some big challenges, how do you cope? Are there any self-care practices that helped you on your journey? How do you get through the tough days?
Sarah: I found my way to unwind or if I am stressed is to go for a walk, or I have very close friends and family who are with me every step of the way. If it wasn’t for them some days I don’t know how I would cope.
“I still find it hard to deal with some everyday needs that I do for my son, but you can’t give up it’s just a bad day and tomorrow is always a new day!!”
Natalie: What advice would you give a mum who is beginning her journey after receiving her child’s diagnosis?
Sarah: Reach out and see what other parent’s out there are going through. Whether it be a similar circumstance to your child’s diagnosis, it can be very overwhelming, but don’t ever feel like you can’t ask questions or even speak up. You know your child best and what you think they are best at needing and doing. I found myself not talking to many people for a while, then I was introduced to a few lovely mum’s who have children with many different needs, and it was amazing to see how much you have in common with them, and how much easier it is to ask those silly little questions, to even the big ones , as long as you reach out to people, we are all going through similar circumstances. My opening up has changed my life for the best, I have met so many great loving parents out there!
Natalie: What are some lessons and blessings you have learnt since becoming Tyler’s mum? How has it changed you as a person?
Sarah: I am blessed to have become a mother. I have become a very different person since having my son, he has changed my life soo much and only for the better. It hasn’t changed me so much in my personality as I am always a bubbly person, I just think it’s made me take life more seriously, and that every day is never going to be the same as the last…
Natalie: Do you have a favourite quote, prayer, or piece of miracle inspiration that you would like to leave us with?
“I believe that we are all put on this earth for a reason, and I believe the exact same with birth, we have been blessed with a child who needs our extra love and support as God chooses those who can handle and appreciate what life truly is”
If you would like to share your miracle moments and special needs journey, please get in touch here.
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